A rare tumour is making my husband forget our family

My husband is forgetting our family – and he’s only got three months left to live because of a rare brain tumour

  • Wayne Chorlton, from Porth, Wales, was diagnosed with a rare brain tumour 
  • Read more: I can only afford to eat once a week and drink tea for hunger pains

A woman has shared the heartbreak of her ‘soulmate’ being given just three months to live – and says he’s already starting to forget his family.

A few months ago, Kirsty Chorlton, from Porth, Wales, was left devastated as she asked her husband, Wayne, about their wedding day and he couldn’t recall any details about the special event.

The loss of his memories is the latest tragic symptom to hit the father-of-two, who has a butterfly glioma, a rare tumour that is slowly eating away at his brain.

Wife Kirsty, 34, is now sharing their story to raise awareness and funds so they can make memories together with their daughters, Daisy-Marie and Evie, aged four and two.

The pair have recently renewed their vows to give her husband, aged 37, new memories of their wedding.

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Wayne Chorlton, from Porth, Wales, has been diagnosed with a rare brain tumour that is erasing his memories of his wife, Kirsty and their two daughters, Daisy-Marie and Evie, aged four and two

‘Hearing that the love of my life has cancer was my worst fear coming true,’ the mother, who is a full-time carer said. 

‘Actually being told the news broke me but my first reaction was that he was going to die and I was going to lose him.

What is Butterfly glioma?

Butterfly glioma is a rare form of tumour that spreads through the brain’s two hemispheres across the two corpus callosum, which connects both sides of the brain. 

The tumour is thought to be aggressive, and patients diagnosed with butterfly gliomas are only given a few moths to live. 

Some patients can live years after being diagnosed, but these cases are considered rare.  

Due to a lack of literature on the condition, little is known of this type of tumour. 

Removing as much as the butterfly glioma as possible is considered the best course of treatment. 

‘Now, we’ve been left completely devastated as a family, as his memory has gone really bad and he can’t remember much of his daily routine or big life moments.

‘I wouldn’t wish this on my worst enemy and I can’t believe this is happening.

‘Wayne is [so young] and we should have the rest of our lives together, it doesn’t feel real knowing I’ll have to one day bury my soulmate, the father of my children.

‘I’m scared to death of the unknown, but our vow renewal was the best day ever.

‘It was so nice to go out and enjoy our day, while forgetting about everything for a while – but most importantly, Wayne really loved the day.’

Kirsty and Wayne started their love story back in April 2010, feeling an instant connection – and just eight months later, he popped the question.

Soon after, they welcomed their two daughters in October 2018 and November 2020 respectively and life was good.

In December 2014, Wayne began having ‘blinding headaches’ which caused him to collapse and start acting out of character, such as drinking hand soap.

Initially, Wayne claims he was told the symptoms were due to a migraine, but after visiting an optician and having multiple PET scans, as well as MRIs, his diagnosis was confirmed.

Over the next six years, the father underwent invasive forms of radiotherapy and chemotherapy in a bid to see his little girls grow up.

The pair renewed their wedding vows after Kirsty realised Wayne had forgotten about their original wedding day 

Proud father-of-two Wayne with his two daughters. The family man began to have blinding headaches in 2014 

Wayne with his daughter Evie. Kirsty was devastated by her husband’s diagnosis. In February, the family were told the tumour was no longer responding to the treatments

The father-of-two’s tumour is now incurable, and Kirsty admitted that the ordeal has been ‘exhausting’ for the family 

Tragically, in February 2023, the family were told the tumour was no longer responding to the treatments.

Speaking about the tragic ordeal, Kirsty said: ‘It was very exhausting, especially being told his cancer was terminal and had spread to the rest of his brain, possibly his spinal cord too.

‘A few months ago, Wayne suffered a two-hour long seizure, where I was told he would be dead within the next few hours.

‘He was unresponsive for over 30 hours before coming back around but I think this worsened his memory.’

Pictured: Kirsty and Wayne in 2010, when they got together. The couple were happy for four years before he was diagnosed 

The happy couple on their wedding day, which happened more than ten years ago. Kirsty was devastated to find out Wayne had no memory of their special day 

Kirsty was told to ask her husband routine questions in a bid to keep his brain active, but she quickly realised he remembered little-to-nothing about the biggest moments of his life.

She said: ‘It was horrible, because I had to keep reminding him that his nana had passed away and I knew from that moment that he couldn’t remember anything beyond that date.

‘I asked him about our wedding day and the only thing he could remember was the date but not our special day at all. It completely broke me, as I’ve never seen him like this.

The couple with some of their friends. Kirsty’s mum, Kathleen, has launched a GoFundMe to raise £3,000 for her son-in-law in order to help him make memories 

The couple at a fancy dress Halloween party in 2021, before they learned Wayne’s cancer was incurable 

‘Now, he can’t remember our children being born or their birthdays, it’s such a sad situation to be in and it’s heartbreaking for all of us, especially Wayne.’

Kirsty’s mum, Kathleen, has launched a GoFundMe to raise £3,000 for her son-in-law to make memories with his family, with donations totalling £2,100 so far.

Kirsty added: ‘I’m terrified of bringing up my children without him and I’m scared they won’t remember him.

‘Our youngest doesn’t really understand and our eldest is non-verbal autistic, so she doesn’t understand either, but when the time comes, I know it will leave them heartbroken.

‘It’s breaking my heart that I can’t stop this happening to him, but I love Wayne so much.

‘I wouldn’t be anywhere else other than by his side, as it’s always been us two for the last 13 years and I will continue to be here until the unthinkable day comes.’

Kirsty explained that her daughters, pictured with their dad, are too young to understand Wayne’s condition 

The couple are now making the most of the time they have left together following the news Wayne’s condition is not responding to treatment anymore 

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